Helpful Links


LymeDisease.org – www.lymedisease.org

LymeDisease.org is grounded in the principles of patient empowerment, participation, and self-determination. We fight to make the patient voice stronger


Solve ME/CFS Intiative – http://solvecfs.org

SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure.


Lyme Disease UK – LymeDiseaseUK.com

Lyme disease UK exists to support people who are living with the effects of Lyme disease and are in need of support and guidance


National CFIDS Foundation – http://www.ncf-net.org

Support for people who have CFIDS (chronic fatigue and immune dysfunction syndrome also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and many other names).


PANDORA – http://www.pandoraorg.net

PANDORA is a grassroots advocacy organization that promotes awareness of ME/CFS, Fibromyalgia, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease.


The Institute for Neuro Immune Medicine – http://www.nova.edu/nim

A premier research and treatment center for Chronic Fatigue Syndrome and other related Neuro-Immune diseases such as Human Immunodeficiency Virus (HIV/AIDs), fibromyalgia, autism, Lyme disease and Gulf War Syndrome


Attention Restoration Therapy – https://positivepsychologyprogram.com/attention-restoration-theory/

The interaction between individual and environment is the restoration of our attention, our energy, and ourselves by experiencing or viewing nature 


ME Ass UK – https://www.meassociation.org.uk/

M.E. Connect helpline service offering support and information to anyone affected by M.E. 


National Fibromyalgia & Chronic Pain Association (NFMCPA) – https://www.fmcpaware.org/

Have a vision to end chronic pain conditions from derailing lives by promoting early diagnosis and driving scientific research for a cure


Living With Fibromyalgia – https://www.livingwithfibro.org/c/general

Online Support Group and forum for sufferers of fibromyalgia


Fed up with Fatigue – https://fedupwithfatigue.com/best-cannabis-strains-for-fibromyalgia/

A really wonderful blog set up by Donna Burch for chronic illness sufferers.  This link explains the best cannabis and CBD for fibromyalgia and how to use them


Disability Rights UK – https://www.disabilityrightsuk.org/

DRU act in all sectors, to support disabled people’s rights and priorities 


Versus Arthritis – https://www.versusarthritis.org/about-arthritis/conditions/fibromyalgia

Information booklet for sufferers of fibromyalgia from Versus Arthritis


Lyme Net – http://www.lymenet.org/SupportGroups

A list with links to support groups all over the world


 

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